05
Jun
On the occasion of International MPS Awareness Day 2026, Harivansh, Deputy Chairman, Rajya Sabha, launched the book "SHAURYA: A Father's Promise" at Sir Ganga Ram Hospital, New Delhi, during a special event dedicated to raising awareness about Mucopolysaccharidosis (MPS) and rare diseases. Written by Saurabh Singh, Co-founder of the Rare Diseases India Foundation (RDIF), SHAURYA: A Father's Promise tells the story of his son Shaurya, but echoes the pain, courage, and hope of millions of rare disease families around the world. Through Shaurya's courageous battle with MPS II (Hunter Syndrome), the book gives voice to families who refuse to…
